8-23-08 weekend

The PICU ward here is brand new, so they don't have that many patients. When we first got here it was Blake and one other girl. A few more kids came and went during the week but now he is the only one. This afternoon there were three nurses on so he was getting pretty spoiled. He has been holding down his feeds this week. He had one or two large vomits at the beginning of the week so they knew I wasn't making stuff up. The nurses were joking saying he was having excercist projectile vomits. The only thing missing was the head spinning. All his tests came back pretty good. They think he might have had a viral infection that wore out of his system by the time we got him in and settled. They also think his meds were causing havic with his reflux. He has seen many specialists. His Pulminary specialist came and saw him and took him off his Theophllyne. That was the med that helped him with his caffeine level and respiratory additive. With out it in his system he began having apneas. He thinks it was making his reflux worse. A side effect of the meds is hypertension and aggitation of his reflux. So his bp has been better with it out of his system. They did an oxi test the night before and found he does a lot of periodic breathing so they put him on oxygen Friday and did another oxi to see if it made a difference. It did help reduce breathing issues so the Pulmanologist is going to keep him on the oxygen. He said since Blake's lungs are underdeveloped still it is going to have to be something he grows out of. Basically he thinks Blake will have to be on oxygen for the next 2 months, but could get off of it sooner. They have also stopped his BP medicine because his bp has dropped into normal range since being off the Theo. Now we are just down to 2 reflux meds, vitamins/iron and a stool softner. Poor man had to have a supository every night because the soy was backing him up and he would scream from not being able to go. Boy did he go once he got it. Blake got to meet all the many specialists possible that an infant can see. We will have to follow up with them so they can monitor his progress.


Dad is doing good. His surgery went great and he is back at home now. He still has to have a nurse come to the house every day and give him shots of thinner and Kumadin and draw his blood. We are going to fly to Ohio for Labor Day. The doctors gave us the all clear so my my dad will finally get to see Blake. He hasn't seen him since he was 3 weeks old.