6-17-08

Well not too many changes in the last two days. He has had some not so good mornings but does better through out the day. He is still at room air 21% which is good but they have not been able to lower any of the rates yet on the cpap machine. Darn-it. It is ok, we will get there. I forgot to say before that they have moved him up in his diaper size. He still fit "barely" in the teenytiny ones but he was managing to pee out of them so they had to put him in the next size up. We have to fold it over to make it fit and overlap the straps but it works and holds it all in. I had a bad night last night myself. My bp started going up (it did it the night before too and I called the doctor and he said to take an extra 100 mg of my pill so I did). So when it started going up again last night I took one like the night before. He has been trying to wein me down, but it is not working to well. After a little bit I took my bp and it had gone up even more to 157/114. I tried to call my doc but he was off last night. I was also having abdominal pain like I had when I relapsed. I think it was just reflux or something because after several hours and half a bottle of mylanta and a roll of rolaids it finally went away and I was able to go to sleep, but I had a lot of drama dealing with the doctor on call for my doctor. He was pretty much an ass and not very helpful. Anyway, my bp went down some, not all the way but enough for me to not stress over it and I went to sleep, but this morning and all day I have felt horrible and ended up napping a lot. I am going to try and go by my docs office tomorrow and talk to him to see what I should do about my meds. Ok back to Blakey. He did not want his cpap today and kept trying to push it off of his nose when I was holding him. I had to wrap up his arms so he couldn't get to it. Feisty little man. His temp was pretty low today. Not sure why. It was at 96, which is not good at all for babies. The nurse put heated gel pads all around him on his body to see if it would help, then we put him in a little flannel outfit that was huge on him, (pictured above). His legs only came down to the part of the outfit where the knees are supposed to be. It was so big on him but helped warm him up. She swaddled him up and put his hat on him. Then she turned up the air temp a little in his bed to try and help. I guess it worked well because when I came back later his temp was up to 100.7 OK way too high now. LOL he just can not get a break. Good thing he was getting his bath, that helped bring down his temp. I bathed him and he did very well, did not cry much at all. He was wide awake afterwards. His hair was so fuzzy after it dried. The nurse had to give him a supository tonight because he had not pooped. Wow did he ever pooped. I went to change the diaper and the clean one stuck to the dirty one when I picked it up, so of course he started pooping even more and it went all over the bed, his outfit and him. Nice right. I cleaned him up, we changed his bed and changed his clothes, tucked him in and he went right to sleep and was out cold by the time I left. He did have a lot of spit up today and was able to blow some ginormous bubbles. I should rent him out as a bubble machine. Some of the pics above are of when he was getting suctioned. They had to change out his tape so I got to take pics of him with out anything on his face (except his feeding tubes). His poor little nose is so stretched out. He looks like a little piggy. The other is of him in an outfit. That is the smallest one I could find, and it is still too big. They are made really wide for some reason. And of course pics of me and Rob with him.