There weren't too many changes yesterday. Today we spent all day up at the hospital. He was very unstable this morning and around lunch time. He got his shots this morning so he was probably still upset from that. The doctor called me and said that they lowered his feedings a little because he has too much electrolytes and is releasing too much fluids so they want to be able to cut back on the diaretics. So in order to they cut back his feedings. Part of his blood work looks better but there is one other part that shows inflimation so they are going to keep him on another two days worth of antibiotics and then they will probably take him off of it as long as everything looks good. They did a catscan on his brain tissue. It is the 30 day scan to check and see if any of his brain tissue was damaged. It turned out great. No problems and no damage. We are very happy about that. So we were up there from 1pm till 10 pm this evening. The NICU shuts down between certain times to allow for rounds and shift changes. So during one of those times we went down to the admin office to find out info on Blake's social security disability paperwork that we have been waiting on. The lady we had been working with called the austin office to find out why we hadn't heard from them yet. Apparently the Pasadena office that was supposed to send our paperwork here never did and it is missing. Along with that, they deleted our account information from the system completely. So all the work we had done to get the disability for Blake that he qualifies for is gone. Robert is going to have to go back down there and find out who messed up. He is of course not happy right now. All of our originals are gone and can not be found. When preemies are born under 2 lbs they qualify for disability. It is pretty much like getting Medicaid that will cover all the extra bills that our insurance does not cover. With out it we will have to pay A LOT of extra money. SO that is of course one more stress on me. I am trying to not worry about it and just work through it with my mom's help. After all that drama, we went back so I could kangaroo Blake. The nurse had just changed him and of course while I was holding him he pooped so I had to change it again. At 6 we went to a meeting for parents and we met with that Speech Therapist. She gave us really good information on the different developmental stages of preemies and how they are completely different than term babies. Once Blake finally reaches his 40 gestational weeks he will start over and be considered 0 weeks corrected. So he might be 4 months but will be 0 corrected weeks. That is so crazy. They also taught us about self soothing signals, stress signals, rooting (when he searches for something to suck on) and other things.
So when we came back to the bay where his incubator is, he was wide awake and she was getting him ready for me to bath him. When he heard my voice he turned his head all the way to the side to where he could "see" me. The nurse went to lower his incubator down some so that I could reach easier and still sit down if I needed while bathing him. When she did, the feeding machine that is connected to his feeding tube that goes into his intestines managed to vibrate itself right off the counter and hit the floor. When it did it jerked his feeding tube straight out of his intestines and out the mouth. He jumped cause it scared him but he didn't cry or anything. I can't imagine how that must have felt. A tube getting pulled out your intestines and throat really fast. I hope it did not hurt him. He did not seem to act like it did. There is nothing sharp it is just a small skinny tube so the nurse said if anything it would have given him a wierd feeling. I then got to bath him and he of course got upset when the water hit him but calmed down after that. After I bathed him, dried him off, and put on his new diaper he decided he was happy. When the nurse changed out his bedding my mom got to hold him up in her hands so she was happy too. The nurse had to put his tubing back down his throat. Every time she stuck her gloved fingers into his mouth he started sucking on them. We started laughing cause it was so cute. He would take his fingers and stick them in his mouth and try to suck on them. He is showing multiple signs of self soothing which is great. He is also now able to turn his head from one side of the mat all the way over when he is laying on his back. He is building up those muscles. He is going to be so strong and he is already showing what a fighter he is. His eyes are still dialated, but because he had them so wide open tonight we got to see the blue in his eyes. We will see if they change color or not since most all babies are born with blue eyes. He is looking cuter every day. Oh yea he has gained weight. He is up to 2 lbs 4 oz. We are almost at a pound gained. YEAH!
So when we came back to the bay where his incubator is, he was wide awake and she was getting him ready for me to bath him. When he heard my voice he turned his head all the way to the side to where he could "see" me. The nurse went to lower his incubator down some so that I could reach easier and still sit down if I needed while bathing him. When she did, the feeding machine that is connected to his feeding tube that goes into his intestines managed to vibrate itself right off the counter and hit the floor. When it did it jerked his feeding tube straight out of his intestines and out the mouth. He jumped cause it scared him but he didn't cry or anything. I can't imagine how that must have felt. A tube getting pulled out your intestines and throat really fast. I hope it did not hurt him. He did not seem to act like it did. There is nothing sharp it is just a small skinny tube so the nurse said if anything it would have given him a wierd feeling. I then got to bath him and he of course got upset when the water hit him but calmed down after that. After I bathed him, dried him off, and put on his new diaper he decided he was happy. When the nurse changed out his bedding my mom got to hold him up in her hands so she was happy too. The nurse had to put his tubing back down his throat. Every time she stuck her gloved fingers into his mouth he started sucking on them. We started laughing cause it was so cute. He would take his fingers and stick them in his mouth and try to suck on them. He is showing multiple signs of self soothing which is great. He is also now able to turn his head from one side of the mat all the way over when he is laying on his back. He is building up those muscles. He is going to be so strong and he is already showing what a fighter he is. His eyes are still dialated, but because he had them so wide open tonight we got to see the blue in his eyes. We will see if they change color or not since most all babies are born with blue eyes. He is looking cuter every day. Oh yea he has gained weight. He is up to 2 lbs 4 oz. We are almost at a pound gained. YEAH!
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